Mixed News

Well, it's mixed news once again. On the positive side, tumours in my lungs appear slightly smaller. On the negative side, the main tumour in my pelvis is larger. The consultant has decided that my current regime has run its course and will be of no further benefit. So, I will be going onto the next 'combination' regime, which is much stronger, as and when there is any further growth in the pelvis. I am back in five weeks to have this checked out. If the pelvic tumour stays as it is, then I will stay off the chemo for now. However, as soon as it changes ... on I go. It is probably worth me upping my gym attendance to try and get as fit as possible in the hope that I might tolerate the new regime more than the doctor anticipates. He thinks it might help.

Mary and I are absorbing this latest news and in the meantime are getting on with things as normal. Little choice really. I have had a radically short haircut so that my children ( at home and at school)get used to me having next to no hair well in advance of the treatment. I think it's safe to say that my daughters hate it! (I'm willing to guess you don't like it either, mum ...) So I guess the next step is to leave photos of Right Said Fred about the house. (Martha stopped me on the stairs the other day as I jogged heartily down wearing shorts and sports vest, on my way to the gym. She eyed me for a moment and said, "I need to tell you dad ... that isn't a good look." Oooooh, she's such a tease!)

Thanks for visiting the blog. Stay in touch.

Be Sure Your Sins Will Find You Out.

I am interviewing for a new Deputy Headteacher on May 2nd and it is an important appointment for obvious reasons. We spent £920 on a national advert and had an astonishing thirty applications! The applicants came to look round, well-versed in the school's recent(highly successful!)Ofsted report and saying very kind things about it. So I am there - talking earnestly, brow furrowed, being modest, explaining the school's vision for future development - and this requires me to bring the small group to my computer to see next year's School Improvement Plan. Now ... the day before, I had changed my screensaver to the one which sends random photographs from the computer slowly across the screen. I was aware of the group staring silently at the computer as I was trying to explain our bid for new Foundation Stage outdoor provision;not one of them seemed to be listening! "Hmmm," I mused. "This lot aren't making the best impression on me!" I turned and followed their gaze. Oh how sad I was to see the screen filled with the photo of Mary and I on 'Children In Need' day, Mary dressed as Maria Von Trapp and me dressed as the Mother Superior. So, I quickly and forcefully said, "Yes, and we like to raise funds for charity ... "
What do you think? Have I got away with it?

Scan results and CEA results on Tuesday. Will Blog again next week.

Update ...

Well, there are new hurdles I'm afraid. My blood test that came back on Wednesday has shown that my CEA level, which had doubled between January and March, has doubled again. It was 17 when I was first diagnosed but is now 100. Not good. The oncologist is holding off putting me on heavy chemo for another three weeks, during which I will be scanned because he is concerned that it is all kicking off (my phrase, not his). I will also have more blood tests at that point. Wouldn't it be good if my scan showed stability and my blood tests revealed a decreasing CEA level? (... prayer hint) I feel okay at the moment - pain levels increasing a little but I am not on the full quota of painkillers yet and day to day life is normal.

Unfortunately, a girl at Martha's school who is in Martha's year has just lost her mum to liver cancer. The penny has dropped with Martha that these things do happen and we have had a few troubled conversations. It is very difficult, trying not to be evasive but also trying to shield her, at least for the moment, from the raw facts. If I go onto the heavier chemo and end up looking like Keith Richards' older brother we might just have to be a little more open about things. Naomi, thankfully, is too caught up with Andrew Lloyd Webber's search for the new Nancy and Oliver to notice much at the moment. As for Joel ... as long as he has Shreddies and Thomas The Tank Engine in his life, everything is okay.

On a positive note, I am off to London tonight to read poetry and I have another reading next weekend up her in Pocklington. It's a great distraction for me, and I love doing them. And, what with a couple of meetings at Betty's tearoom already in the diary for next week, life is looking a bit brighter!

I will let you know the scan results. Thanks for visiting the blog.

The Latest ...

Waitings rooms are not good places, and it is fair to say that Mary and I sat in the Cancer Unit feeling about as comfortable as Heather Mills at a Beatles convention. The news really isn't great, although there are a few positives. The postives are that the tumours on my lungs have decreased in size very slightly and that my liver is also clear. However, the main tumours in my pelvis have been untouched by the chemo. More worrying is the fact that my CEA level is much higher than expected and high enough to cause the oncologist concern. The CEA test measures the level of activity of the disease and so it is reasonable to assume that things are kicking off a bit, and that it is going to take much stronger chemo to contain it. That said, we are going to continue with the current regime (and the painkillers) until either things get too painful, or the tumours spread. At that point, I will go onto the 'combination chemo' which, sadly, is almost inevitably going to cause me problems.

So, what to pray for, for those of you who believe in it? I really want this chemo that I am continuing with to suppress the disease for a good few months. This is unlikely due to my CEA level, but then I guess that's why we are praying for it. If I can get through the summer before they bring out the 'big guns' then there will be a new deputy in place at school, and I am going to feel a lot better when I have to leave work during the treatment (which is likely).

The oncologist asked which parts of life I would want to reserve energy for, in the event of going onto the new treatment. I think he anticipated my reply about being able to get out and about with the family and I am sure he was waiting for me to refer to 'managing to work part-time.' However, he looked bemused when I added, " ... doing poetry readings and getting to Betty's tearoom." Each to their own.

And so I leave you with a photo of Naomi and I taken last summer ... a reminder that we, as a family, have been saved from horribly bleak circumstances in the past (see A Decade Of Naomi, posted on 21.6.07).

Two Poems, Not About Illness!

Brace yourselves for a change in topic ... two poems on the subject of travelling with eyes shut, one about Joel and one about me. You'll be glad to know that the journey during which I travelled with my eyes shut didn't involve me driving...

Tuesday is the big consultation at the hospital ... scan results that will show the effects, if any, of the chemo. I will post an update later this week.

Thanks for checking the blog. Hope you like these ...





Eyes Shut On A Fast Train


Passing open fields,
a wash of sunset soaking
through, bathing my eyes.

Trees, bridges, pylons.
The neon starts to flicker.
A loose connection?

Buildings gather round.
Black sticks beat a fast rhythm.
A pulse starts to race.

A tunnel. (So soon?)
Dark. The staircase to bed. The
last glimpse of a film.





Shadows

Sliding from the dashboard
over your legs, waist, chest.
Hands can’t swat or trap
the black ghosts
rushing for your face.
They won’t hurt me!
Won’t hurt me!

Trying to peel them off
you haul the zip beneath your chin.
But they'll only find your jumper,
T-shirt,
skin.

You strain against the seatbelt,
jerking at every black burst
on clenched eyelids
until, at last, a queue lets me reach
for the travel blind.

Go to sleep,
because our direction will change;
the sun is moving round.

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No Sleep 'Til Kettering ...

Strands of sunshine eventually force their way through the gap between the curtains of my room. Morning. London is quiet, too quiet. It must be early. I get up and look out the window, pleased to see the sun softening the patchwork of tiled Victorian roofs. In the kitchen, teabags are being dropped into cups as a kettle reaches boiling point. I head down the stairs and take my place at the table. Soon Cole appears, clearly having wakened only seconds before. He has never looked less like his promotional photo on the flier. We exchange a glance as we both reach for the Frosties. We know it's the last day of the tour ... Kettering awaits us. Soon we would be driving away from The Smoke, turning our backs on our opening night (twelve hours before, but it felt more like fifteen.) The M1 ... diet Coke ... Ginster's Buffet Bars ... queing for fuel.
For those about to rhyme ... we salute you!
The shortest tours are often the best, in my experience.

This is a quick post just to say a big thank you to my very good friends in Kettering for turning out in droves and supporting us last Saturday at the poetry reading. It was a great experience for Cole, Martin and myself, but perhaps especially for me as it reminded Mary and I of your loyalty and support. Invaluable! Thank you! It will be one of those memories that I look back on for a very long time.

Thanks also to St. Luke's, Holloway for a great evening on the Friday night. Again, kind people with encouraging words. Let's hope we can do it again sometime.

I think I might accidentally have just written a poem that isn't about illness. I am a bit taken aback myself. When I get it right, I'll post it on the blog, just to give us all a break ...

44 and not counting ...

Birthday Celebrations


I am just about to finish the third chemo cycle out of four. (The routine is for me to have chemo for two weeks and then to have a week’s break so that my body can recover; this happens four times.) My visits to the hospital have been quite encouraging and blood tests suggest that my kidney and liver function is normal and also that my white blood cell count is high enough for me to fight off infection. I have to say that to the surprise of many (including myself) I am feeling really well. The skin on my hands and feet has started to peel a bit (lovely image, I know) but other than that … fine! What is even more encouraging is that I have now been completely off pain-killers for over a week. Until I started chemo I was absolutely dependant on them, so it is a good result indeed. So what is the reward for my stamina and resilience? Well, the doctors have decided to increase my period of chemo from three months to six if I remain well until mid-march, which is when the fourth cycle ends. We still face the harsh reality of the disease being in my pelvis, lungs and bones and I guess that has prompted the decision. Anyway, if this very tolerable chemo regime slows the cancer’s progress, then we are happy and very grateful. A scan in March will confirm the effect of the treatment

And so to family news. I’m sure it will surprise none of you that Mary is in the village panto. She is playing the part of a degenerate buffoon … something she has been able to observe at close quarters for almost twenty years. Naomi and Martha are also in it which leaves Joel and I free for a quick visit to Scotland this weekend. On the national theme, Scottish poet Ronnie Kerr and I enjoyed two readings in and around York last weekend. They were well supported by kind people who had nice things to say. A big ‘thank you’ to them. The tour continues with Cole Moreton and Martin Wroe, and we are visiting St. Luke’s Church, Holloway, London on 15th February and Christ The King Church, Kettering on 16th February. I have a reading in Paris later on in March (he dropped casually … you see I really will go anywhere, even after the weekend’s rugby) and two booked for April ...Bristol and Northwood, London.

Well I will bid you farewell on this first day of Lent. Have you given anything up? On the radio this morning a bishop was suggesting that rather than giving something up (negative overtones and all that) we should consider taking something up instead. Good advice, and so I have started shoplifting.

Thanks as always for visiting the blog and for your support.