Just a quick one to keep you up to speed. Mark is doing ok here at home but is still struggling to do fairly basic things as his energy levels are so low. We haven't ventured outside yet and he is spending much of each day sleeping or reclining.
My frustrations with our most recent hospital experience have been further compounded over the last couple of days. Yesterday I had to take a journey up to the hospital as Ward 15 had forgotten to provide us with the necessary equipment for the district nurse. I ended up poring through items in a store cupboard with the Staff-Nurse trying to match an item with a picture from my camera phone. Then during today's visit from the nurse she was unable to flush Mark's Hickman line (used for taking blood etc. instead of constantly using needles). This was because it hadn't been done when he was on the Ward and now he needs to go in tomorrow for another procedure to have it removed.
Having spoken to various people it does seem that something was amiss regarding Mark's admission and, as an oncology patient, he shouldn't have had to wait hours in A & E and his consultant should have been consulted! Mistakes happen but we are taking steps to make sure this doesn't happen again.
Hopefully I shall engage the teenagers in the next couple of days to put up pics of some jolly moments!
